“Hospices are not just places where life comes to a close…they are places where those left behind learn how to keep on living. When my son Toby died, our hospice didn’t just care for him—it cared for all of us, to give us a future not defined by trauma, but by love, resilience, and hope. Months later, when my daughter had to step back into a hospital—the place where we had first been told we would lose Toby—she froze, overwhelmed by fear and grief. When she returned to the hospice, the very place where Toby had taken his last breath, she ran inside, kicked off her shoes, and threw herself into the arms of a nurse..”
Built to Last
Children’s palliative care funding remains patchy and inconsistent, with families across the UK receiving different levels of care; this is preventing seriously ill children and their families accessing the care they need. A new report, 'Built to Last', published by Together for Short Lives has revealed that the estimated gap in NHS funding for children’s palliative care in England has grown from £285 million to £310 million in just one year. The funding gap of £310 million equates to just 0.16% of NHS England annual budget; we are working with Together for Short Lives to highlight these challenges, and there are many ways you can help support our campaign.
Download the report
How you can help
Sign the open letter to the Prime Minister Add your name on the Together for Short Lives website
Write to your local MP Ask them to press Ministers to take the actions highlighted in the Together for Short Lives report
Donate Just 26% of our funding comes from the government, so we still need public support to help our vital work
